Fibromyalgia Awareness Day – May 12th 2011

Hola,

Here it is, a day where I can try and push awareness of FM, not just for me, but for some dear friends who also have the condition and those the world over with it.

We don’t want your money, we don’t want pity, we don’t want assumptions about us, we just want UNDERSTANDING.

We are not lazy, we are not work-shy, we are not hypochondriacs. I work a 60 hour week, I force myself to get through every day and I try, try, try to do anything to treat this condition.

Do you know how it feels to try and maintain a positive attitude every day, despite being wracked with unrelenting pain in every part of your body? Do you know how it feels to really look forward to having a day out, just one for the first time in a year, and you can’t because you are having a flare-up and not only are you in incessant pain, but your body feels like every last iota of energy has been drained from it?

Despite the FM, the polyarthralgia and polymyalgia, I don’t want to be pitied, I don’t want to give up work and I don’t want people to not know how to talk to me or unable to understand how to interact with me. All I want, is just basic understanding and consideration, just like I give to everybody else. Here is a link to a previous blog which has an easy to understand letter describing what it is like to have fm without all the jargonese;

https://inkipixie.wordpress.com/2011/03/19/this-is-what-it-is-like-to-have-fibromyalgia/

If you would like to find out more, please have a look at the links below. If you want to pass them on, thank you, it would help a lot;

http://www.fibromyalgia-associationuk.org/

http://www.nhs.uk/Conditions/Fibromyalgia/Pages/Introduction.aspx

http://www.cks.nhs.uk/patient_information_leaflet/Fibromyalgia

http://www.facebook.com/event.php?eid=141559805915749

You don’t have to read all of the links, but if you could read just one, it would be very much appreciated.

Have a beautiful day xxxx

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